Sky's the limit

I had just finished reading “The Fault in our Stars” (There are going to be major spoilers in this post so if you haven’t read it I’m just w...

May 10, 2014 Schizencephaly Awareness Day!   TO ALL TO WHOM THESE PRESENTS COME- GREETINGS:   WHEREAS: Schizencephaly as an extreme...

I have made it my mission in life to inform people about Schizencephaly and other rare diseases. I have a lot of friends who have children ...

So I had a nuclear meltdown while we were in New York City. We had been there for several days and when the firemen stopped up and we went ...

I have always loved New York City and this past week I got to show Skylar what it was all about. There are some things that I have noticed a...

They did a really great job last night with the story. Skylar was so happy watching herself. It means a lot to have her story shared and vie...

So my mom has been working with Ms. Candy at Arkansas Hospice to design a really cool shirt for me. They finally came up with something...