Monday, January 27, 2014

Typo

I posted on Facebook a few days ago about a story that a lady wrote about parents that have special needs children. In that story, she mentioned that she doesn't understand how we do it. I had a friend comment and I couldn't agree more that we do it because we love our children. I never considered it a choice if I am going to be Skylar's mom or not. I found out that she had a severe disability and the question wasn't do I still keep her or not. It just becomes your way of life like God gave you a manual on what you're supposed to do. Its kind of crazy but all I've ever raised is Skylar and I know how to care for a baby but I have no idea at what age a child is supposed to start talking or walking. I don't remember what age they can start eating baby food. It's the milestones that I think parents take for granted. It is expected for them to do all of these things. It's when they don't that you realize how important the small things are. Skylar will never walk or talk but she has conquered her own milestones and for me it's better than a first step because she shouldn't be doing as well as she is right now. I had a doctor tell me that when I thought I heard her laugh for the first time to not get caught up in things like that because I will be setting myself up for a lot of disappointment. What they fail to understand is that I have high expectations for my child. I'm realistic about it but if I don't push her who is going to? I sit in IEP meetings and I advocate that they do more therapy and push her because how do you know that she will never do something if she's never given the opportunity to try.  If I'm being honest though, I would ask God why all the time. It took me a long time to understand but I understand why God picked me and I'm glad he did. She is my other half, my soul mate, the piece that completes me. She needs me to care for her, be her advocate, sit with her, protect her, ensure that she has the best life she can have, stay up all night with her when she's not feeling well, praise her, pray for her, comfort her, fight for her, push her, educate myself so that I can make sure she's getting the care that she needs, know her medical history from pregnancy to now, remember all the surgeries, medications, hospital dates, and every bit of essential information that will be asked a million times by different medical professionals, etc. No matter what all I've done for her she's done more for me in her short time than I could have ever done for myself. She's made me a better person and she has given me the drive to fight for things that are most important. She has give me purpose and more compassion. I think that God sent me Skylar because he knew that I needed her probably more than she needed me. I almost think that it's just been Skylar and me for all these years because I didn't have enough love to give. I dedicated everything to her and there wasn't room for much else. God has a plan for me and I know that. I think that God introduced Clint to me at the time that he did because he knew that I would be here right now and that I would need someone to because he knew I couldn't do this alone. I don't understand God's plan and I can't say that right now I even like it but I just pray that he sees me through it and because that saying that God will never give you more than you can handle is starting to feel like it was a typo.

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