Sky's the limit

Being a parent of a terminal child is harder than anyone could ever imagine. I still have days that feel so surreal that one day she will ...

All I want: All I want is nothing more To hear you knocking at my door 'Cause if I could see your face once more I could d...

I’ve tried to write something for a while now and I didn’t seem to get anywhere. Every time things start to look up something happens t...

I had just finished reading “The Fault in our Stars” (There are going to be major spoilers in this post so if you haven’t read it I’m just w...

May 10, 2014 Schizencephaly Awareness Day!   TO ALL TO WHOM THESE PRESENTS COME- GREETINGS:   WHEREAS: Schizencephaly as an extreme...

I have made it my mission in life to inform people about Schizencephaly and other rare diseases. I have a lot of friends who have children ...

So I had a nuclear meltdown while we were in New York City. We had been there for several days and when the firemen stopped up and we went ...